What is there to update? PT/OT/VISION/PHYSICAL STUFF E is doing well with his botox/phenol. He is stepping like a champ, without his legs scissoring each other. Still using the gait trainer to great effect, although whenever we change the way the torso harness is configured, he stands in it like a balky horse, like this is … More Update on the Kid, #A101
SHE LIKES THE D Pardon the mucous, but I’ve just come down with my third cold of the season. I should be used to this, first for having a suppressed immune system, and second for having a kid who attends Early Childhood classes* during flu season. But I am not. So I am taking as … More 2017 State of the Kid
Herein follows an update on the state of the Baby E. this month. We had a righteous torrent of doctor appointments, an EEG, and new medications. EEG #4: Baby E. was truly sleep-deprived for this one. He wailed all throughout the prepping, seriously unnerving the tech who was working feverishly to attach the electrodes. (Oh, that poor tech, who had … More Update on the Babs
Baby, Baby Top News Story: Last night Baby E. slept through the whole night. I can barely type that sentence without flinging over the laptop in joy. Do you know what it’s like to sleep through a whole night after a month of hour-on/hour-off nights? (To specify: Baby E wouldn’t sleep except in our arms. … More A deep breath of ultimate breathiness (breathe from the diaphragm, Marilyn)
SO, BABY Baby E. has infantile spasms/West Syndrome. This is one of those diagnoses where, after hearing it, every nurse or doctor who enters your hospital room will say, “I’m so sorry.” It’s like we’re being repeatedly Tenth-Doctored (instead of rickrolled. Weird). All my info is what i rememeber from doctors at Children’s Hospital in … More Boy howdy, is parenthood no longer anything like my FB feed
Stuff That quote is from one of the writing podcasts I’m catching up on, taken completely out of context. Keeping on. Drinking some Numi Emperor’s Pu-erh tea. Funny what some people describe (universally) as “malty” I taste and smell as “mulchy.” Although the more often I drink it, the more the malty/mulchy tastes like a … More “New and different bad things happen to you at every stage.”
I’ve been seeing this Humira commercial on cable TV. But I kept missing the first part, so at first I thought it was advertising Humira for acne–which is one of the common adalimumab side effects I’ve heard folks who take it bitching about online. I also always thought of it as a real intense medication, like … More Has the whole world gone crazy?