H-A-double L-barf

We spent Halloween in Urgent Care after E had a morning seizure minutes after waking up. The emergency med shut down the seizure after a few minutes (and put poor little guy to sleep, eventually) but it makes him nauseated. So when we try to give him his seizure meds, up they come right away. … More H-A-double L-barf

Update on the Babs

Herein follows an update on the state of the Baby E. this month. We had a righteous torrent of doctor appointments, an EEG, and new medications. EEG #4: Baby E. was truly sleep-deprived for this one. He wailed all throughout the prepping, seriously unnerving the tech who was working feverishly to attach the electrodes. (Oh, that poor tech, who had … More Update on the Babs

A deep breath of ultimate breathiness (breathe from the diaphragm, Marilyn)

Baby, Baby Top News Story: Last night Baby E. slept through the whole night. I can barely type that sentence without flinging over the laptop in joy. Do you know what it’s like to sleep through a whole night after a month of hour-on/hour-off nights? (To specify: Baby E wouldn’t sleep except in our arms. … More A deep breath of ultimate breathiness (breathe from the diaphragm, Marilyn)

Boy howdy, is parenthood no longer anything like my FB feed

SO, BABY Baby E. has infantile spasms/West Syndrome. This is one of those diagnoses where, after hearing it, every nurse or doctor who enters your hospital room will say, “I’m so sorry.” It’s like we’re being repeatedly Tenth-Doctored (instead of rickrolled. Weird). All my info is what i rememeber from doctors at Children’s Hospital in … More Boy howdy, is parenthood no longer anything like my FB feed

“New and different bad things happen to you at every stage.”

Stuff That quote is from one of the writing podcasts I’m catching up on, taken completely out of context. Keeping on. Drinking some Numi Emperor’s Pu-erh tea. Funny what some people describe (universally) as “malty” I taste and smell as “mulchy.” Although the more often I drink it, the more the malty/mulchy tastes like a … More “New and different bad things happen to you at every stage.”