SLEEP Guess who started sleeping through the night consistently? It lasted for two whole weeks. Then E had a session of botox and phenol to loosen his leg muscles, and boy, were they tight, and suddenly — no more night sleeping. He gets up every two-three hours or so. I’m hoping this is a side … More Kid Update
SPOILERS I was driving home today, enjoying a little college radio in the truck. The song ended and the DJ talked about it for a bit, then did a quick news break about what failed garbage our president and Senate majority leader are up to at the moment, and then: “So on Game of Thrones … More Spoiler Theatre of the Mind
NOT REALLY SICK Weird migraine today. I did not know my headaches were migraines until my eye doctor informed me. Funny — you’d think I would know. But then, humans can be good at health denial. I can absolutely verify through family and friend experience that downplaying or denying health issues is considered emotionally tough, … More Can You Even Handle This Blossom End Rot
KID UPDATE TIME He is doing….REALLY, REALLY GREAT. I mean, we still have all the health and disability and special needs stuff. Nothing magical has happened to make that disappear, or make healthcare a thing we can just pretend we don’t need. Ahem. Likesomepeopleinthiscountry argh argh argh. But E is doing well. Every day we, … More Update on the whatsoever
What’s new with E? HEALTH STUFF He still has all the same health problems. But at our last neurology checkup, E’s doc informed us that he thinks E is still having seizures, despite the information we got directly following his last EEG (see also The Kid’s EEG Results, Latest) and that in order to really figure … More Update on the Kid, #5981
I AM NO EARS :( This last cold has done something funky to my ears. They’re crackling and popping and very sensitive to any nose-blowing attempts. And everything sounds really annoying. E’s yelling, babbling, and crying are turned up to eleven and agonizing in close quarters. A.’s footsteps sound like stomps, and his stomps like the … More If you haven’t got your health, you haven’t got anything.
“You know, if you believe things badly enough, you can make them true.” “There’s nothing you could have done differently[.]” Superbabies Don’t Cry This article brought back a lot of memories of my own pregnancy, and how I felt right up to the moment when my OB-GYN came in to tell me that it was all going … More How is Disabled Babby Formed?
This morning I read this over at Love That Max: Group Therapy: Would you let your son with special needs go to a dance with this girl? Short answer: No. Gaaarhg. Long answer? While I AM running a (haphazard) blog and should be writing my own ragey screeds about special needs kids being used oh-so-innocently for … More Cloudy with a Chance of Argh
CHILD HEALTH STUFF This week we have a barrage of appointments for E. We’ll be spending the bulk of tomorrow getting his first botox injections, and later in the week we’ll do his 24-48 hour-long EEG. In happier news, E. took his first self-motivated steps in his gait trainer! I was not home, of course, but … More Spring Break without the WOO
It’s time for the medical healthcare tidbit roundup! This week I learned that: Every single one of E’s medical accounts requires three phone calls to make sure that they are running it through primary insurance AND secondary insurance. With each new phone call, I verify that they have both numbers. “Yep, we got them!” is the … More Odds and Ends of Life with Disability