MEMORY STUFFED As you may recall (because I certainly don’t), I have a devil of a time remembering things these days. Some people call it mommy-brain, or parental brain damage, or maybe “getting old and feeling your brain cells wink out one by one.” I tried to compensate by writing myself lists. I may have … More I think I’ve written this post BEFORE.
From Love That Max: The moment one cerebral palsy doctor will never forget I recognize that botox and phenol injections aren’t for every kid or adult with CP. But they are helping E for the time being, and it’s wonderful to see him move his legs more easily.
E caught a devil of a cold and it was lasting too long, so we took him in to the doctor. When we arrived, he was coughing and sneezing up a storm, so I popped one of the child-size masks on him. I expected him to cry, or get upset. But he blinked slowly and … More Future Vigilante
We are sleep training again, using the gradual extinction method, again. Wait, scratch that. We WERE sleep training again, using the gradual extinction method, again, until E and I got colds. Colds tend to wipe out any progress we make — or at least, that’s my story and I’m sticking to it. It’s either that or … More To Sleep, Perchance to Dream, Aye, there’s the BITE, BITE OW OW I BIT MYSELF MOOOOOOOOOOOOOOOOM
[OBLIGATORY LINE ABOUT NOT UPDATING REGULARLY/RECENTLY/ENOUGH] Done! KID STUFF E is doing his thing. We bookended our holiday travels with his doctor appointments. Not a great idea in hindsight, nope. But we got through it with minimal tears and lots of family and friend goodtimes. He did another round of botox and phenol shots in … More Update Schmupdate
WE ARE SICK WE ARE SICK WE ARE SICK SICK SICK I should’ve been suspicious about E’s abnormally quick recovery from his recent cold. But I was oblivious until last night, when he refused to settle and I passed him off to A after two and a half hours — somewhat wildly with that familiar … More The trouble is he’s growing
I’ve gotten my reading mojo back and have been steadily working through my giant pile o’ library books. Recently I finished 50 Ways to Soothe Yourself Without Food by Susan Albers, because since E’s birth, I’ve been comforting myself early and often with whatever junk I could keep in the house. It did not help when we moved … More A more specialized form of soothing
What is there to update? PT/OT/VISION/PHYSICAL STUFF E is doing well with his botox/phenol. He is stepping like a champ, without his legs scissoring each other. Still using the gait trainer to great effect, although whenever we change the way the torso harness is configured, he stands in it like a balky horse, like this is … More Update on the Kid, #A101
NOT DEAD YET A sudden plague manifested in our house (mysteriously) after I shook some strangers’ hands. E had the worst of it last night, and A is hard on his heels. Our awesome sleep record of 1-2 wakeups per night is now what is this putting down of which ye spake? But we are slogging … More You’re not fooling anyone, y’know
SLEEP Guess who started sleeping through the night consistently? It lasted for two whole weeks. Then E had a session of botox and phenol to loosen his leg muscles, and boy, were they tight, and suddenly — no more night sleeping. He gets up every two-three hours or so. I’m hoping this is a side … More Kid Update