Botoxing

From Love That Max: The moment one cerebral palsy doctor will never forget I recognize that botox and phenol injections aren’t for every kid or adult with CP. But they are helping E for the time being, and it’s wonderful to see him move his legs more easily.

Future Vigilante

E caught a devil of a cold and it was lasting too long, so we took him in to the doctor. When we arrived, he was coughing and sneezing up a storm, so I popped one of the child-size masks on him. I expected him to cry, or get upset. But he blinked slowly and … More Future Vigilante

To Sleep, Perchance to Dream, Aye, there’s the BITE, BITE OW OW I BIT MYSELF MOOOOOOOOOOOOOOOOM

We are sleep training again, using the gradual extinction method, again. Wait, scratch that. We WERE sleep training again, using the gradual extinction method, again, until E and I got colds. Colds tend to wipe out any progress we make — or at least, that’s my story and I’m sticking to it. It’s either that or … More To Sleep, Perchance to Dream, Aye, there’s the BITE, BITE OW OW I BIT MYSELF MOOOOOOOOOOOOOOOOM

Update Schmupdate

[OBLIGATORY LINE ABOUT NOT UPDATING REGULARLY/RECENTLY/ENOUGH] Done! KID STUFF E is doing his thing. We bookended our holiday travels with his doctor appointments. Not a great idea in hindsight, nope. But we got through it with minimal tears and lots of family and friend goodtimes.  He did another round of botox and phenol shots in … More Update Schmupdate

Kid Update

SLEEP Guess who started sleeping through the night consistently? It lasted for two whole weeks. Then E had a session of botox and phenol to loosen his leg muscles, and boy, were they tight, and suddenly — no more night sleeping. He gets up every two-three hours or so. I’m hoping this is a side … More Kid Update