Happy May the Fourth! Still feeling sad about Peter Mayhew. Recently I finished a letter to a friend, stuck it in the mail, and realized I’d spent the majority of the letter talking about dogs instead of what I had wanted to ask: what are your days like these days? So, to that friend and … More A Day in the [Special Needs] Bot Life
To parent well, you have to form new habits. Luckily for parents, it’s an activity that comes with the super-effective conditioning stimuli: soul-wrenching screams. I am here to tell you that these work, especially for someone like me who spent the decade after reaching age of majority indulging myself and only myself. Parenting and proper parently … More May be habit-forming
In addition to the books I mentioned in my last post, I’ve also been poking around online for articles about other parents like me. I might not agree with every little bit in these links, but there was something in each one that really struck a chord with my experience. Having said that (of course), … More Internet Stuff I’m Reading
We all have freaking colds, again. And fabulously, there’s an intestinal component that makes it difficult to assess whether I’m having my first flare in four years, or just a crappy gut virus courtesy of said cold. I say to you, I say, AAAAAAAARRRRRRRGHHHHHHHHHHH In positive news! Well, mostly everything else lately is positive. The weather … More The Last of the Summer Colds
Sometimes I get down, thinking that the only way I can control the way I eat is to strictly control it. If I think, Okay, you can have something sweet, I am already halfway through the giant bag of gummy candy. It feels like garbage. The IBD-AID diet is helping me feel like I am not garbage, but … More The Distant Allure of Control
Here’s a nice article I read recently, written (as it says) by an adult with CP: To Parents of Children with Cerebral Palsy, from an Adult with CP I don’t know how E’s life will compare with hers, but it’s nice to get out of my own head and have the perspective. What’s new with … More What I Need To Hear, Usually/Update on the Kid
MEMORY STUFFED As you may recall (because I certainly don’t), I have a devil of a time remembering things these days. Some people call it mommy-brain, or parental brain damage, or maybe “getting old and feeling your brain cells wink out one by one.” I tried to compensate by writing myself lists. I may have … More I think I’ve written this post BEFORE.
From Love That Max: The moment one cerebral palsy doctor will never forget I recognize that botox and phenol injections aren’t for every kid or adult with CP. But they are helping E for the time being, and it’s wonderful to see him move his legs more easily.
E caught a devil of a cold and it was lasting too long, so we took him in to the doctor. When we arrived, he was coughing and sneezing up a storm, so I popped one of the child-size masks on him. I expected him to cry, or get upset. But he blinked slowly and … More Future Vigilante
We are sleep training again, using the gradual extinction method, again. Wait, scratch that. We WERE sleep training again, using the gradual extinction method, again, until E and I got colds. Colds tend to wipe out any progress we make — or at least, that’s my story and I’m sticking to it. It’s either that or … More To Sleep, Perchance to Dream, Aye, there’s the BITE, BITE OW OW I BIT MYSELF MOOOOOOOOOOOOOOOOM