My dude E slept through the night last night for the first time in a couple weeks, so A and I did, too. The house is filled with delight. Delight, I say! And snores — those too. I have also been taking advantage of his unbroken sleep to read while tucked in bed with a … More Patron saint of heating pads and regrets
I am delightfully busy with New Job, so busy, in fact, that even though it’s part-time I am too tired for anything outside of it. But yay, additional money. It doesn’t help that E’s weird summer of seizures has mostly manifested as — surprise! — poor sleep. Whether that is due to new meds or … More What am I doing, air? Where am I going, star?
This has been a tough summer. Starting in May, E began having big seizures. By big, I guess I mean, ones that we can tell that oh shit, something is happening, we have that emergency med, don’t we? What are we supposed to do again? Start timing! Wait, it’s over. Okay. I think I have the … More In Danger of [unspecified]
Happy May the Fourth! Still feeling sad about Peter Mayhew. Recently I finished a letter to a friend, stuck it in the mail, and realized I’d spent the majority of the letter talking about dogs instead of what I had wanted to ask: what are your days like these days? So, to that friend and … More A Day in the [Special Needs] Bot Life
To parent well, you have to form new habits. Luckily for parents, it’s an activity that comes with the super-effective conditioning stimuli: soul-wrenching screams. I am here to tell you that these work, especially for someone like me who spent the decade after reaching age of majority indulging myself and only myself. Parenting and proper parently … More May be habit-forming
In addition to the books I mentioned in my last post, I’ve also been poking around online for articles about other parents like me. I might not agree with every little bit in these links, but there was something in each one that really struck a chord with my experience. Having said that (of course), … More Internet Stuff I’m Reading
We all have freaking colds, again. And fabulously, there’s an intestinal component that makes it difficult to assess whether I’m having my first flare in four years, or just a crappy gut virus courtesy of said cold. I say to you, I say, AAAAAAAARRRRRRRGHHHHHHHHHHH In positive news! Well, mostly everything else lately is positive. The weather … More The Last of the Summer Colds
Sometimes I get down, thinking that the only way I can control the way I eat is to strictly control it. If I think, Okay, you can have something sweet, I am already halfway through the giant bag of gummy candy. It feels like garbage. The IBD-AID diet is helping me feel like I am not garbage, but … More The Distant Allure of Control
Here’s a nice article I read recently, written (as it says) by an adult with CP: To Parents of Children with Cerebral Palsy, from an Adult with CP I don’t know how E’s life will compare with hers, but it’s nice to get out of my own head and have the perspective. What’s new with … More What I Need To Hear, Usually/Update on the Kid
MEMORY STUFFED As you may recall (because I certainly don’t), I have a devil of a time remembering things these days. Some people call it mommy-brain, or parental brain damage, or maybe “getting old and feeling your brain cells wink out one by one.” I tried to compensate by writing myself lists. I may have … More I think I’ve written this post BEFORE.