SLEEP Guess who started sleeping through the night consistently? It lasted for two whole weeks. Then E had a session of botox and phenol to loosen his leg muscles, and boy, were they tight, and suddenly — no more night sleeping. He gets up every two-three hours or so. I’m hoping this is a side … More Kid Update
KID UPDATE TIME He is doing….REALLY, REALLY GREAT. I mean, we still have all the health and disability and special needs stuff. Nothing magical has happened to make that disappear, or make healthcare a thing we can just pretend we don’t need. Ahem. Likesomepeopleinthiscountry argh argh argh. But E is doing well. Every day we, … More Update on the whatsoever
Since the beginning of this year, I’ve had the opportunity to see town hall meetings. Most of are about the current healthcare debate. Some start out as on a different topic, like vet benefits, and veer inevitably into healthcare. Some are broadcast or reported online, with video or audio. Clips of others appear on the … More Open Letter to Congress about AHCA/BCRA, healthcare in the U.S., and just what in the hell are you doing there, anyway?
After spending most of the day listening to MPR coverage of the Comey testimony, and watching Twitter explode about the UK elections, I watched Senator Claire McCaskill get frustrated about healthcare: “Will there be a hearing on the health care proposal?” Senator @clairecmc asked today in the Finance Cmte. You should watch: #Trumpcare pic.twitter.com/rmKB0rGnTM — … More Storify Stuff
What’s new with E? HEALTH STUFF He still has all the same health problems. But at our last neurology checkup, E’s doc informed us that he thinks E is still having seizures, despite the information we got directly following his last EEG (see also The Kid’s EEG Results, Latest) and that in order to really figure … More Update on the Kid, #5981
CHILD HEALTH STUFF This week we have a barrage of appointments for E. We’ll be spending the bulk of tomorrow getting his first botox injections, and later in the week we’ll do his 24-48 hour-long EEG. In happier news, E. took his first self-motivated steps in his gait trainer! I was not home, of course, but … More Spring Break without the WOO
I’M GONNA MAKE YOU MY REGULAR SATURDAY NIGHT MEDICAL THING, BABY Apparently I am only going to post medical things from now on. But this is in line with our mission statement because I THINK the original point of this blog was to whine about ulcerative colitis and library science, or something. E had his MRI. I … More More Medical News
Yes, a good thing has been happening: E is sleeping through the night regularly. And by sleeping through the night, I mean he sleeps for 8-10 hours without waking up. And by regularly, I mean more than two nights in a row. And now that I have typed all that, I want to delete it. … More But there was a good!
The Crap The EEG was not a happy event. No surprise there, I guess. I was likely more hopeful than even I thought I would be. Some notes from our shiny new neurologist: The EEG revealed that E is still having seizures. They are difficult to identify on sight if you’re not a neurologist, as … More Well, that ended poorly
SHE LIKES THE D Pardon the mucous, but I’ve just come down with my third cold of the season. I should be used to this, first for having a suppressed immune system, and second for having a kid who attends Early Childhood classes* during flu season. But I am not. So I am taking as … More 2017 State of the Kid