Since the beginning of this year, I’ve had the opportunity to see town hall meetings. Most of are about the current healthcare debate. Some start out as on a different topic, like vet benefits, and veer inevitably into healthcare. Some are broadcast or reported online, with video or audio. Clips of others appear on the … More Open Letter to Congress about AHCA/BCRA, healthcare in the U.S., and just what in the hell are you doing there, anyway?
Here’s your must-read for today: an open letter to Congressional Republicans regarding their haste to repeal Obamacare and replace it with nothing. The letter is written by Lynne M. Thomas (who you may know as one of the publishers/editors of Uncanny Magazine, or as a special collections librarian, or as a podcaster, or as all three … More Healthcare and Open Letters
After spending most of the day listening to MPR coverage of the Comey testimony, and watching Twitter explode about the UK elections, I watched Senator Claire McCaskill get frustrated about healthcare: “Will there be a hearing on the health care proposal?” Senator @clairecmc asked today in the Finance Cmte. You should watch: #Trumpcare pic.twitter.com/rmKB0rGnTM — … More Storify Stuff
BOTOX FOR BABIES It’s really fun to call your insurance for preauth and explain why your kid is getting botox. You would think people wouldn’t make jokes, but they do! Ha ha! Baby leg wrinkles, am I right? Oh, fine, I guess it’s covered. Jeez, why would you want to get that for a kid … More The Kid’s EEG Results, Latest
CHILD HEALTH STUFF This week we have a barrage of appointments for E. We’ll be spending the bulk of tomorrow getting his first botox injections, and later in the week we’ll do his 24-48 hour-long EEG. In happier news, E. took his first self-motivated steps in his gait trainer! I was not home, of course, but … More Spring Break without the WOO
It’s time for the medical healthcare tidbit roundup! This week I learned that: Every single one of E’s medical accounts requires three phone calls to make sure that they are running it through primary insurance AND secondary insurance. With each new phone call, I verify that they have both numbers. “Yep, we got them!” is the … More Odds and Ends of Life with Disability
No, your resident grammar freako did NOT make a spelling error in the title of this post! I’ve simply created a new portmanteau out of “chilling” and “Children’s Hospital.” You’re welcome! Stop cringing! We’re currently prepping for E’s first EEG of 2017, and then a followup neurology appointment, also his first of the year. He … More Chilldrens, amirte?
SHE LIKES THE D Pardon the mucous, but I’ve just come down with my third cold of the season. I should be used to this, first for having a suppressed immune system, and second for having a kid who attends Early Childhood classes* during flu season. But I am not. So I am taking as … More 2017 State of the Kid
At 1:58 p.m., A informed me that exactly one year has passed since we freaked out on the awful receptionist* at our pediatrician’s office and took E to Colorado Children’s Hospital for infantile spasms. What a mixed year it has been. E still hasn’t had a normal EEG. We have to wait until our … More One Year Out
Herein follows an update on the state of the Baby E. this month. We had a righteous torrent of doctor appointments, an EEG, and new medications. EEG #4: Baby E. was truly sleep-deprived for this one. He wailed all throughout the prepping, seriously unnerving the tech who was working feverishly to attach the electrodes. (Oh, that poor tech, who had … More Update on the Babs