BOTOX FOR BABIES It’s really fun to call your insurance for preauth and explain why your kid is getting botox. You would think people wouldn’t make jokes, but they do! Ha ha! Baby leg wrinkles, am I right? Oh, fine, I guess it’s covered. Jeez, why would you want to get that for a kid … More The Kid’s EEG Results, Latest
CHILD HEALTH STUFF This week we have a barrage of appointments for E. We’ll be spending the bulk of tomorrow getting his first botox injections, and later in the week we’ll do his 24-48 hour-long EEG. In happier news, E. took his first self-motivated steps in his gait trainer! I was not home, of course, but … More Spring Break without the WOO
It’s time for the medical healthcare tidbit roundup! This week I learned that: Every single one of E’s medical accounts requires three phone calls to make sure that they are running it through primary insurance AND secondary insurance. With each new phone call, I verify that they have both numbers. “Yep, we got them!” is the … More Odds and Ends of Life with Disability
No, your resident grammar freako did NOT make a spelling error in the title of this post! I’ve simply created a new portmanteau out of “chilling” and “Children’s Hospital.” You’re welcome! Stop cringing! We’re currently prepping for E’s first EEG of 2017, and then a followup neurology appointment, also his first of the year. He … More Chilldrens, amirte?
SHE LIKES THE D Pardon the mucous, but I’ve just come down with my third cold of the season. I should be used to this, first for having a suppressed immune system, and second for having a kid who attends Early Childhood classes* during flu season. But I am not. So I am taking as … More 2017 State of the Kid
At 1:58 p.m., A informed me that exactly one year has passed since we freaked out on the awful receptionist* at our pediatrician’s office and took E to Colorado Children’s Hospital for infantile spasms. What a mixed year it has been. E still hasn’t had a normal EEG. We have to wait until our … More One Year Out
Herein follows an update on the state of the Baby E. this month. We had a righteous torrent of doctor appointments, an EEG, and new medications. EEG #4: Baby E. was truly sleep-deprived for this one. He wailed all throughout the prepping, seriously unnerving the tech who was working feverishly to attach the electrodes. (Oh, that poor tech, who had … More Update on the Babs
SO, BABY Baby E. has infantile spasms/West Syndrome. This is one of those diagnoses where, after hearing it, every nurse or doctor who enters your hospital room will say, “I’m so sorry.” It’s like we’re being repeatedly Tenth-Doctored (instead of rickrolled. Weird). All my info is what i rememeber from doctors at Children’s Hospital in … More Boy howdy, is parenthood no longer anything like my FB feed
Stuff That quote is from one of the writing podcasts I’m catching up on, taken completely out of context. Keeping on. Drinking some Numi Emperor’s Pu-erh tea. Funny what some people describe (universally) as “malty” I taste and smell as “mulchy.” Although the more often I drink it, the more the malty/mulchy tastes like a … More “New and different bad things happen to you at every stage.”
So here’s what I’ve been up to for the past two weeks. Questcor Finds Profits, at $28,000 a Vial (from 2012) Nice sum up, NYT: The most important use of Acthar has been to treat infantile spasms, also known as West syndrome, a rare, sometimes fatal epileptic disorder that generally strikes before the age of 1. … More Anyone who says differently is selling something.