Chilldrens, amirte?

No, your resident grammar freako did NOT make a spelling error in the title of this post! I’ve simply created a new portmanteau out of “chilling” and “Children’s Hospital.” You’re welcome! Stop cringing! We’re currently prepping for E’s first EEG of 2017, and then a followup neurology appointment, also his first of the year. He … More Chilldrens, amirte?

One Year Out

At 1:58 p.m., A informed me that exactly one year has passed since we freaked out on the awful receptionist* at our pediatrician’s office and took E to Colorado Children’s Hospital for infantile spasms.   What a mixed year it has been. E still hasn’t had a normal EEG. We have to wait until our … More One Year Out

Update on the Babs

Herein follows an update on the state of the Baby E. this month. We had a righteous torrent of doctor appointments, an EEG, and new medications. EEG #4: Baby E. was truly sleep-deprived for this one. He wailed all throughout the prepping, seriously unnerving the tech who was working feverishly to attach the electrodes. (Oh, that poor tech, who had … More Update on the Babs

Boy howdy, is parenthood no longer anything like my FB feed

SO, BABY Baby E. has infantile spasms/West Syndrome. This is one of those diagnoses where, after hearing it, every nurse or doctor who enters your hospital room will say, “I’m so sorry.” It’s like we’re being repeatedly Tenth-Doctored (instead of rickrolled. Weird). All my info is what i rememeber from doctors at Children’s Hospital in … More Boy howdy, is parenthood no longer anything like my FB feed

“New and different bad things happen to you at every stage.”

Stuff That quote is from one of the writing podcasts I’m catching up on, taken completely out of context. Keeping on. Drinking some Numi Emperor’s Pu-erh tea. Funny what some people describe (universally) as “malty” I taste and smell as “mulchy.” Although the more often I drink it, the more the malty/mulchy tastes like a … More “New and different bad things happen to you at every stage.”

Anyone who says differently is selling something.

So here’s what I’ve been up to for the past two weeks. Questcor Finds Profits, at $28,000 a Vial (from 2012) Nice sum up, NYT: The most important use of Acthar has been to treat infantile spasms, also known as West syndrome, a rare, sometimes fatal epileptic disorder that generally strikes before the age of 1. … More Anyone who says differently is selling something.