This has been a tough summer. Starting in May, E began having big seizures. By big, I guess I mean, ones that we can tell that oh shit, something is happening, we have that emergency med, don’t we? What are we supposed to do again? Start timing! Wait, it’s over. Okay. I think I have the … More In Danger of [unspecified]
To parent well, you have to form new habits. Luckily for parents, it’s an activity that comes with the super-effective conditioning stimuli: soul-wrenching screams. I am here to tell you that these work, especially for someone like me who spent the decade after reaching age of majority indulging myself and only myself. Parenting and proper parently … More May be habit-forming
SLEEP Guess who started sleeping through the night consistently? It lasted for two whole weeks. Then E had a session of botox and phenol to loosen his leg muscles, and boy, were they tight, and suddenly — no more night sleeping. He gets up every two-three hours or so. I’m hoping this is a side … More Kid Update
What’s new with E? HEALTH STUFF He still has all the same health problems. But at our last neurology checkup, E’s doc informed us that he thinks E is still having seizures, despite the information we got directly following his last EEG (see also The Kid’s EEG Results, Latest) and that in order to really figure … More Update on the Kid, #5981
BOTOX FOR BABIES It’s really fun to call your insurance for preauth and explain why your kid is getting botox. You would think people wouldn’t make jokes, but they do! Ha ha! Baby leg wrinkles, am I right? Oh, fine, I guess it’s covered. Jeez, why would you want to get that for a kid … More The Kid’s EEG Results, Latest
I’M GONNA MAKE YOU MY REGULAR SATURDAY NIGHT MEDICAL THING, BABY Apparently I am only going to post medical things from now on. But this is in line with our mission statement because I THINK the original point of this blog was to whine about ulcerative colitis and library science, or something. E had his MRI. I … More More Medical News
The Crap The EEG was not a happy event. No surprise there, I guess. I was likely more hopeful than even I thought I would be. Some notes from our shiny new neurologist: The EEG revealed that E is still having seizures. They are difficult to identify on sight if you’re not a neurologist, as … More Well, that ended poorly
No, your resident grammar freako did NOT make a spelling error in the title of this post! I’ve simply created a new portmanteau out of “chilling” and “Children’s Hospital.” You’re welcome! Stop cringing! We’re currently prepping for E’s first EEG of 2017, and then a followup neurology appointment, also his first of the year. He … More Chilldrens, amirte?