Open Letter to Congress about AHCA/BCRA, healthcare in the U.S., and just what in the hell are you doing there, anyway?

Since the beginning of this year, I’ve had the opportunity to see town hall meetings. Most of are about the current healthcare debate. Some start out as on a different topic, like vet benefits, and veer inevitably into healthcare. Some are broadcast or reported online, with video or audio. Clips of others appear on the … More Open Letter to Congress about AHCA/BCRA, healthcare in the U.S., and just what in the hell are you doing there, anyway?

Yep, still thinking and talking about it

Excellent takedown on the whole growth attenuation thing, this one by Ingrid Tischer from the blog Tales from the Crip. (Aside: can I say enough how much I love that blog title? The answer is no!) The Top 10 Reasons Why Medically Stunting the Growth of Children With Severe Disabilities Continues To Be an Ethical and Well-Thought-Out Solution … More Yep, still thinking and talking about it

More thoughts about that Growth-Attenuation Therapy article

I’ve been reading a lot since posting yesterday about the NYT Magazine article. These thoughts come from an author/editor on twitter, Kayla Whaley (@PunkinOnWheels). I’ve linked to a Storify of her tweets about the language of the article below: Language, Framing, and Perspective in Reporting on Disability I was initially going to link to individual … More More thoughts about that Growth-Attenuation Therapy article

Thoughts about that Growth-Attenuation Therapy article

Big discussions going on with my friends on Twitter and Facebook about this article: Should Parents of Children with Severe Disabilities Be Allowed to Stop Their Growth? I’m just gonna go ahead and drop myself in the NO column right now. No, you shouldn’t screw with your child’s body for what is essentially the sake of … More Thoughts about that Growth-Attenuation Therapy article