It’s time for the medical healthcare tidbit roundup! This week I learned that: Every single one of E’s medical accounts requires three phone calls to make sure that they are running it through primary insurance AND secondary insurance. With each new phone call, I verify that they have both numbers. “Yep, we got them!” is the … More Odds and Ends of Life with Disability
The above is a screencap of an image NPR used to headline an article about gratitude.* Naturally I read the article and then got stuck on the picture and, in particular, the caption. “Female hands giving a surprise present to a loved one.” I don’t know how NPR does their captions. I kind of doubt they … More Handsy
I’ve been reading a lot since posting yesterday about the NYT Magazine article. These thoughts come from an author/editor on twitter, Kayla Whaley (@PunkinOnWheels). I’ve linked to a Storify of her tweets about the language of the article below: Language, Framing, and Perspective in Reporting on Disability I was initially going to link to individual … More More thoughts about that Growth-Attenuation Therapy article
Big discussions going on with my friends on Twitter and Facebook about this article: Should Parents of Children with Severe Disabilities Be Allowed to Stop Their Growth? I’m just gonna go ahead and drop myself in the NO column right now. No, you shouldn’t screw with your child’s body for what is essentially the sake of … More Thoughts about that Growth-Attenuation Therapy article
The subtitle of this post is Because I looked at too many shitty things on the internet and I now feel, unsurprisingly, like shit Sometimes when you are holding a fussy baby who will not go to sleep, and you have a smartphone, you — no, wait. Let me skip the angsty still-a-New-Mom bullshit (and … More Fun Things That I Needed Today
A wonderful take-down of a Minnesota Monthly cover story that set my teeth on edge (guess I’m one of those fun-hating longjohn-wedgied killjoys, right, MM? Bleah) from one of my favorite blogs, Daughter Number Three: Minnesota Monthly, the Sell-Out’s Sell Out I think what pisses me off the most about crap like this, is the … More Exit hmmph, chased by thermals
If there is one thing parenting has taught me so far, it is that multitasking is not real. Or not possible. Not seriously. You can PRETEND you can check your phone while feeding the baby, but it’s not fer real. Naturally this has thrown my interviewing skills into disarray. “Multitasking” and all the pretend-benefits that … More Stop telling me I can’t multitask, I can totally multitask.
If you’d like to read an article about Tourette Syndrome from someone who has it (and thus describes it better than the typical shite we see onscreen where a character with TS serves as a comic sweary relief, ha ha!) go check out this article at xojane: I Have Tourette Syndrome and CBiT Changed My … More Pop Cultural Tourette Touchpoint = Cussing Hilariously. What else?
While in the NICU we were introduced to the many different ways nurses get nutrients into premature babies. Baby E got the gamut, as he was a wimpy white boy and also took his sweet time figuring out just how to eat. Gavage feeding, or feeding via naso/orogastric tubes Tubes! A quick way to get … More Ways to Feed Your Baby
OF COURSE YOU DO. Who doesn’t? What’s Wrong With Me? (via The New Yorker) This essay really hits all my ulcerative colitis high notes. It also hits home — while my problems can be currently be suppressed with meds, I’ve entered disease/treatment limbo. There’s no “better”, there’s only maintenance. When you have a chronic autoimmune … More Want to know more about autoimmune disease?