Regarding my previous post about extraintestinal manifestations (see E.I.(W): the extraintestinal (weirdness)) — I forgot to link the article that sent me down the rabbit hole: Extraintestinal Manifestations of Inflammatory Bowel Disease Originally linked on HealingWell’s UC forum. A little light Sunday afternoon reading! You’re welcome, xo xo et al. UNRELATEDLY I’ve borrowed season 1 … More EIM Article link
Here’s an article someone linked on the HealingWell forum. I’m thinking IBD/ulcerative colitis, obviously, but it still applies to anyone who is living with a chronic disease.
From CNN this past June: Anatomy of a 97,000% Drug Price Hike: One family’s fight to save their son If you can get past the breathless CNN house style, it’s a pretty reasonable take on this BS. My favorite bit: “This was a particularly egregious situation where they raised prices extraordinarily, but then they sought … More ICYMI: Drug companies being gross
In addition to the books I mentioned in my last post, I’ve also been poking around online for articles about other parents like me. I might not agree with every little bit in these links, but there was something in each one that really struck a chord with my experience. Having said that (of course), … More Internet Stuff I’m Reading
“And we will always protect Americans with pre-existing conditions. We’re going to take care of them. Some of the Democrats have been talking about ending pre-existing conditions.” (From MPR News’ article, “Fact check: President Trump’s Rochester rally.”) PSA for anyone who thought our president knew … well … anything. I guess this could be another … More Quote of the Week
E caught a devil of a cold and it was lasting too long, so we took him in to the doctor. When we arrived, he was coughing and sneezing up a storm, so I popped one of the child-size masks on him. I expected him to cry, or get upset. But he blinked slowly and … More Future Vigilante
“You know, if you believe things badly enough, you can make them true.” “There’s nothing you could have done differently[.]” Superbabies Don’t Cry This article brought back a lot of memories of my own pregnancy, and how I felt right up to the moment when my OB-GYN came in to tell me that it was all going … More How is Disabled Babby Formed?
It’s time for the medical healthcare tidbit roundup! This week I learned that: Every single one of E’s medical accounts requires three phone calls to make sure that they are running it through primary insurance AND secondary insurance. With each new phone call, I verify that they have both numbers. “Yep, we got them!” is the … More Odds and Ends of Life with Disability
The above is a screencap of an image NPR used to headline an article about gratitude.* Naturally I read the article and then got stuck on the picture and, in particular, the caption. “Female hands giving a surprise present to a loved one.” I don’t know how NPR does their captions. I kind of doubt they … More Handsy
I’ve been reading a lot since posting yesterday about the NYT Magazine article. These thoughts come from an author/editor on twitter, Kayla Whaley (@PunkinOnWheels). I’ve linked to a Storify of her tweets about the language of the article below: Language, Framing, and Perspective in Reporting on Disability I was initially going to link to individual … More More thoughts about that Growth-Attenuation Therapy article