Top News Story: Last night Baby E. slept through the whole night.
I can barely type that sentence without flinging over the laptop in joy. Do you know what it’s like to sleep through a whole night after a month of hour-on/hour-off nights? (To specify: Baby E wouldn’t sleep except in our arms. We put him down, it was eyes open, screamy cries. So A would take one hour while I slept, then I’d take the next hour while he slept. I look at pictures of us from this past month and we look …well, it’s not good.) Anyway. He probably won’t sleep through the whole night tonight, because…
Next Top News Story: today we gave Baby E. his last shot of ACTH. He still has to take blood pressure meds, and we’ll start the weaning of those next Monday. But he isn’t having any more of the spasms, and his EEG looks clear of hypsarrhythmia. So now we cross our fingers and wait. If the spasms come back, we’ll do another course of ACTH. (A prospect I’m sure the insurance company is real jazzed about.) If he has new and different seizures, we’ll try new and different medicine to control them.
It is amazing how much more doable this crappy diagnosis looks after a full night of sleep. Or at least, amazing how much my personality devolves when I do not have regular and partially unbroken sleep. I am glad I have not interacted with too many people this month. (Hurray for cave troll jobs.) I woke up at 5:30 am and thought, he didn’t wake us up. He’s dead in there and I lay very quietly, listening for any sound of Baby E. He woke up at about 5:35. I am ecstatic.
Editing, editing, editing. Baby E. gave me a 45-minute nap this morning, glory-be! So The Novel That Ate Lake Tahoe is almost done with the final pass. I’m so excited to get it out of my face.
Went to the Dollar Store (urgh) and bought a pool noodle for Baby E.’s PT, and some shiny-pretties for his OT. They were stocked up for Halloween, so I bought a bunch of decorations for the house, because we don’t have any and it’s a travesty.
Also in the spirit of Yay-Up-and-Coming-October, check out the wonderful creepy links at this AskMe post:
Watching a lot of stuff on the old tee-vee. I picked up season 1 of Jeeves and Wooster, and I am heartily ashamed that I have never seen it before. Delightful! Baby E. and I are working our way through Season 5 of Buffy. And A. and I started watching Iron Man 3 last night. (We still watch movies in serial these days. Leave us alone, we make our own fun.) I am liking it a lot more than I thought I would. Possible culprit: Shane Black and his weird love of explodey Christmases? Anyway, I look forward tonight to the thrilling conclusion.